Update: Neurology Appt.

Hello all!  I just wanted to write a quick note on our appt. today with the neurosurgeon. It was an overall encouraging appt. We were not told anything negative, however the Dr. did not feel that he could really offer up any concrete advice to us at this point. He was not able to view the most recent ultrasound results that showed the malformation in our babies brain, due to poor quality images that were faxed. So that was discouraging a bit to us, but he expressed that it wouldn't really have changed his perspective at this point any way. He read over the notes and basically said that, at this point we just have to wait to see how she is after birth and once stable do an MRI, and that will give a clearer picture of what is happening. The positive he shared was that, "if this 'malformation' is an isolated event for our baby, meaning no chromosomal issues or other brain anatomy complications... that it is very likely that this condition could have little to almost no affect on her... that she may do just fine with it... and that we may notice some gross motor delays", but other than that he wasn't overly discouraging. He also said that he "would have liked to tell us everything is going to be just fine, but he said he couldn't do that either". So we feel we got a rather cautious, conservative, yet hopeful opinion. But what it really boils down to in his opinion, is we just have to wait and see... that "a lot of developing still has to happen" and he DID say.... that "it is possible, that the cerebellum and vermis (the areas that have the inadequate growth... could continue to develop more!!!" So we were really encouraged by that! So thank you for your prayers! The Dr. even made reference to "prayers" being said to aide in what we are desiring for in our little ones growth! That was cool to hear! And an answer to one of our specific requests too!

So thank you everyone... keep up your powerful and effective prayers! Please! We will be going in on Thursday for our high level ultrasound with the perinatologists (high risk maternity doctors). So continued prayers please. We will be doing another ultrasound and checking growth.

1. Let's pray for complete healing!
2. No other growth or development concerns, all other healthy anatomy and rate of growth
3. For a thorough job to be done on the u/s and for a healthy echocardiogram (heart ultrasound)
4. For wisdom and discernment for the Dr.
5. Peace for us and God's presence upon us during the appt.

Thank you so much everyone. We love all of you and we are so grateful for your support and prayers. Aren and I, both, have GREAT peace in our hearts.

p.s. I will try to send out emails...but the easiest place to get information is to visit here.  I don't want to or mean to leave anyone off of the email...but I may by accident... so please check the blog from time to time if you haven't heard from me in awhile... might mean nothing new going on or it may mean I had a lapse and accidentally left you or someone else off the email... but the blog is a good reference point...I will try my best to update everyone here. Thank you!